May 22, 2009

News for Noah's Tummy


Today we took Noah to see an allergist in hopes of figuring out if an allergy is contributing to these vomiting episodes he has been having. The Dr. was really nice and very good with Noah. He was very easy to talk to and Noah seemed to take really well to him. The test was pretty amazing. Nothing barbaric like the old way of giving allergy shots up and down the child’s arm. This test was quite simple and Noah didn't seem to notice at all. They basically did 4 sets of "stamps" on his back. Each set contained 8 allergens ranging from different food allergies, to out-door allergies, to indoor allergies. In the last set they had 2 controls. One was Saline, which doesn't really do anything and the other was histamine, which has a bump and red reaction. So these helped to determine which, if any, Noah was allergic to. If any of the other sets had a reaction similar to or greater than the histamine then that proved to be an allergy. Of all the ones I tried to guess the allergies would be...the ones he actually had, were nowhere near what I thought. He had a +2 for chicken and a +3 for feathers. So weird. All this time he was allergic to chicken and we always thought it was the one thing he would eat that would be a good source of meat/protein for him and now he can't have it. The Dr. did say this was one most kids tend to out-grown. SO maybe he will be able to eat chicken again someday. I must say, on the bright side these have to be the easiest allergies to remedy. With chicken, it is just as easy to remove it from his diet and try again in a few months and see if there is a reaction. At least I don't have to go and read the labels on everything to check for an ingredient. And with the feathers, we just have to cover his pillow in a specific casing or just change his pillow to a non-feather one. So I must say, if he's going to have allergies...at least these are easy.

 

So maybe him eating chicken was the problem with the vomiting all along and the feathers were certainly the culprit for the constant nasal/sinus issues. We'll see. The next time he has a vomiting episode we still want to get the shunt work up because we can never be too careful with that, but we will also try chicken with him again in a couple weeks and see if he ahs a reaction the next day.

 

I must say, I do feel a sense of relief in discovering this today. Praise the Lord for answers.

April 23, 2009

Update on Noah April 2009

Hi Everyone!

Its been a really long time since the last update I sent out and I figured now would be a good time with Noah turning 4 tomorrow. Four has come up so fast and I just can't believe how fast time flies with children...slow for them, but fast for us!

As most of you know, Noah became a big brother back in November and it has been a slow, but very fun process of him stepping into his role as a big brother. He loves giving Kayla kisses just before going to bed and lately it seems he wants to give her kisses at random moments through out the day. Kayla adores her big brother and she watches him intently as he plays and watches Sesame Street...she seems to really like watching Elmo right along with him.

Noah has made some pretty big strides in school this year. His progress on his walker has been amazing. He has great control of his walker and he walks around with confidence all the time now. He loves to go for walks down our street and even out to play with the kids in our neighborhood...and they seem to love having him out to play with them. In the past month his PT has started training him in using "walking sticks". I was given the opportunity to see him on them right before Easter and it really brought a tear to my eye watching him because I could just envision the potential for him once he can walk with those confidently and independently. Right now he is just learning to balance on them before actually getting to walk and his PT set a goal of him being able to use them in the class room by the end of next school year.

In speech they are working on getting Noah to use sentences when he talks, rather than just one or two word answers. He is working on "why" and "what" questions and has learned a lot about colors, numbers and the alphabet. A couple of Noah's favorite phrases as of late are: "I feel angry", which he learned from Rosita, on Sesame Street. And he also likes to say, "Your driving me nervous" which he got from mixing two different phrases he hears me say...usually, if I catch Noah playing on the stairs I tell him, "your making mommy nervous. Please come up or go down" and also (I promise this isn't something I tell my sweet lil man), "Your driving me nuts" which I tell the dog when he wont get out from under my feet (our dog tends to be a bit neurotic at times). He does say a LOT more, but I always think those two phrases are so funny to hear coming from my little mans mouth.

In OT Noah is learning how to use a "tripod" hold (how you would hold a pen) to color or write things. They are also working with him on using scissors with these really cool "loop" scissors. I am on a mission myself to find some to use with him at home this summer.

In class Noah is learning how to count things rather than just counting to ten and they are also working on teaching him how to spell his name. They have done many field trips over this past year...the dentist, the grocery store and tomorrow we will be going to the park and to dairy queen. Noah has so much fun with his friends at school and loves going 4 days a week. We have seen so much progress in Noah's development since he started school and each day we are blessed to see the miracles God has done and continues to do in his life. He has FAR surpassed what the doctors had expected from him.

Kevin and I have joined a committee at Winchester Medical Center called the NICU Parent Advisory Committee and it has been such a joy to be a support for not only the NICU staff there, but more importantly the families that are having to experience the NICU themselves. Its so much fun to see the NICU staff on a more regular basis and get to share with them all the strides Noah has made over the years. One of the things we are doing with the NICU PAC is the March of Dimes March for Babies on May 16th. We will be walking 4+ miles that day. The money we raise supports programs in our community that help moms have healthy, full-term pregnancies. And it funds research to find answers to the serious problems that threaten our babies. Since you are receiving this email from us today, then you know the story of Noah and what he's come from and even what I have experienced in my "challenging" early term pregnancies. Even in my last pregnancy with Kayla, I had to go through a lot in order to keep the pregnancy as long as I did...one day short of 37 weeks. Its loads of prayers, God's healing touch and direction that has lead us to the right doctors and care for myself and our babies, and also in big part the research and programs funded by this amazing organization that have helped our son, Noah to survive and over come the odds. I know this is a very tough economy right now and it has really hit each family on different levels, but we are asking that you prayerfully consider supporting both Kevin and I on this walk. Please come take a look at the web-page I created in honor of my son and my late nephew, Tristan to find out how to make a donation (click on link below).

Our constant prayer is for Noah to walk on his own, independent from his walker, walking sticks or holding someones hands. We also pray that in the time it takes to get to that point that his confidence grows as he uses tools such as his walker and now, the walking sticks. Please also pray for Noah as he has suffered from a stomach "problem" (for lack of better term) for the past 6+ months. We are praying that the Lord would just lead and direct us to the right doctor to figure out the problem and bring him some comfort finally to his little tummy. We are so grateful for all God has done in Noah's life and in our family. And we are so blessed to have all the people in our life that have been there to support us and lift us up in prayer and befriend us over the past few years during all these challenges we have faced.

Love and blessings to you all!

http://www.marchforbabies.org/lyteyz

January 11, 2009

Crochet


I started crochet about a year ago and I have been completely addicted to it ever since. I have made several baby blankets for friends, a shawl for my mom, a hat for myself (my first project), and my most recent finished project was a scarf for my BFF.


I recently became aware of a website called Ravelry (noted on my favorites list) and I just can't peel my eye's off the site. There is so much to look at on there. So much to learn from the site and so many people to meet. I have gotten GREAT inspiration from this site and I want to learn so much more about crochet. I feel like my craft is so basic at this point...especially when compared with the art I have seen displayed from other people on the site. I am so much more excited about crochet now that I have become a member of this site.


My goal/resolution this year is to complete at least one baby blanket a month and then be able to donate them to the babies in Winc. NICU at the end of the year...and hopefully I can do this annually. My son was born 3+ months early and those months were spent in 3 different NICU's...the Winc. one being the last of the three. He spent 6 weeks there and the care he received was amazing. The people that work their LOVE what they do and it really shows. Anyway, my heart goes out to these babies and their parents and I feel that although this is small (in comparison), it is something I can do to show support for these families.


So I started my first blanket of the year a couple days ago and so far, so good. I hope I can maintain the pace.