June 30, 2009

(this was posted on facebook last night in case you may have seen it there)
I just wanted to send out an update on Noah. Some of you may or not know that Noah had surgery today...shunt revision. It has been a very long process getting to this point. Many months of vomiting, feeling sick and cranky, visits to the doctor and specialists ranging from Neuro-Surgeon, Neurologists, GI Specialist, Allergist to Ophthalmology...we have seen them all. Lots of long days in the car going back and forth trying to figure this out. In the past month Noah has had 3 hospital stays...including this one. We are currently at DC Children'sNational Medical Center. When we got here, more than ever before we were certain there was something wrong with his shunt. Yesterday they decided to tap his shunt...similar to a spinal tap they go right into the shunt. The result was bittersweet. The tap did not draw any fluid, which meant something was wrong with the shunt, which meant surgery (the bitter), which meant this was the answer that we had been praying for (the sweet) to all the vomiting, sickness and crankiness over the past several months.
Today, Noah's surgery was a success. They were able to get in and out fairly quickly and remove the old shunt and install the new one without having to adjust the tubing that drains the fluid from his head into his tummy. There were no major complications during the process. Noah is currently sitting up (somewhat) in his bed, watching Kung Fu Panda (for about the 20th time since we arrived here) and eating his 8th cracker (its all he wants and he gets whatever he wants right about now). Assuming all goes well tonight and after a clear CT Scan, we will most likely get to go home tomorrow.
Kayla has been just wonderful. She seemed very concerned for her big brother through out this process. Every time someone would come to adjust some wiring or mess with Noah, she would be straining her neck to check it out...almost as if making sure no one was hurting her big brother. It was very sweet to witness her concern in her own baby way. God's hand has been on Noah and all of us through out this process and we are so grateful to him for finally revealing the root of this problem. We are looking forward to many days without vomiting and I would be happy to never see a specialist or hospital again...where my kids are concerned.
Thank you all so much for your prayers. We have definitely felt them through out this. God has been so faithful...even in my very weak moments as a mommy watching my son go through this time in his life. We are so grateful that he has blessed both our children with very sweet spirits...especially for Kayla to be a baby and still manage to be so content with all these hospital stays and driving back and forth.
Thank you also SO MUCH for all the encouraging emails, FB messages and phone calls. It has really kept us strong and helped us get through this...we have the greatest friends and family that anyone could have. We are truly blessed!
Love and blessings back at ya!

Peace be to you, and love joined in faith, from God the Father and the Lord Jesus Christ. Grace (God's undeserved favor) be with you all who love our Lord Jesus Christ with undying and incorruptible love. Amen
Ephesians 6:23-24
Erin Wright

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